Born nine weeks early, Charlotte Williams spent 84 of her 93 days at MUSC Children’s Hospital, battling a series of infections, lung problems, and bleeding and swelling in the brain.
Finally, her little body could not take any more. Her doctor sat down with her parents, Jillian and Steve, to share Charlotte’s heartbreaking prognosis. Together, they partnered with the palliative care team to help guide her end-of-life care.
“We didn’t know what to do or think, and they took us under their wing and guided us fully through the two most difficult days of our lives,” said Jillian. “Finally, they offered to bring in a bed for us on the last day of Charlotte’s life so we could all snuggle together like a family. Never did I imagine that I’d be able to lay in bed with my sweet daughter and forget, if only for a moment, that we were in a hospital.”
On July 14, 2016, Charlotte passed away peacefully, lying in bed with her parents by her side.
“I asked my husband recently, ‘What if they didn’t have palliative care? What would we have done?’ said Jillian. “They helped turn those three scary months into the most beautiful moment we could ever wish for. We’ll always be grateful for that.”
About the Author